My Favorite Things

  • writing
  • Needlework
  • Art
  • Reading
  • Roller Coasters and Amusement Parks
  • Cats!
  • Extreme History
  • Science Fiction
  • Firefly
  • BBC Sherlock

Tuesday, September 25, 2012

"Captain, some dangerous non seqitors have been sighted! What should we do?"
"Phasers on fabulous, Mr Sulu!"

I suppose I should warn anyone reading this blog that it's gonna be weird. Mainly because I am. I've been weird all my life and, frankly, just learned to embrace it. The ADHD is part of it, but I just never really saw eye-to-eye with my peers growing up. I only had a few close friends and they were the unusual ones too. Got bullied a lot in high school  because of it. Looking back, I don't mind too much anymore because I believe that, after death, we are reborn into new bodies in order to learn things we can't learn as spirits. I also believe in karma, which means that those people who bullied me in school or have otherwise been not-nice people will probably come back as cockroaches. *squish*

My sister has a signature file that says something like "Those who mind don't matter and those who matter don't mind". Using that logic, anyone who thinks I am trying to hurt or insult anyone with this blog obviously doesn't know me at all and, therefore, doesn't matter.  I have a button somewhere with the latin version of "Screw 'em if they can't take a joke", which basically matches my philosophy of "Don't take life so seriously. You're not going to get out of it alive anyway." So there. Nyah.

Mmmm...lo-cal ice cream bar--breakfast of champions. And that's because I feel sorta nauseous today. That happens when I'm having something called a Herxheimer reaction, or die-off crisis. I had a pretty good day yesterday, so I can pretty much predict that the next day will be crappy. Okay, let's all sing along with me...

           "I feel crappy, oh, so crappy, I feel crappy and snappy and blah!"

That used to make Dad laugh when I'd sing that on my bad days. I miss him. He was so supportive of my attempts to get diagnosed and treated and he, at 90 years old, used to take care of me--that's how bad it was. I promised him that I'd write a paper about my condition so that others wouldn't have to suffer like I've had to because of the ignorant boobs in the medical profession who A) can't differentiate Mononucleosis from Lymes Disease, and B) don't want to admit that a skin parasite found in third world countries like Africa, Mexico, and South America could possibly find its way into the USA. Sure, no such thing as tourism or illegal immigrants or international trade could possibly be responsible for a little black fly ending up in New Jersey, the swampland of the East Coast, right?  Pardon me while I clean up the sarcasm off the floor before it burns a hole in my downstairs neighbor's ceiling.

Just to clarify for those who don't know, I contracted lymes in March of 1995 (my friends in the Lunatyk Phrynge will remember it as the week before the Balticon when our presentation, "The Masque of the Red Death" was totally dissed for an award even though we won awards for workmanship and some crappy costume by a friend of a judge won an award. That one still pisses me off. Three bad judges, three more cockroaches).  It was misdiagnosed and, therefore, never treated. By the time I was diagnosed with lymes it was 2007 and antibiotics wouldn't do any real good because the disease was so deeply entrenched. Then, on vacation in August of 2003 at the Jersey Shore, I was bitten by a black fly. No big news there, but about a week or two later I started developing red, itchy bumps on my arm where the bite was, which then opened up into non-healing sores. No doctor knew how to treat it, so it just spread all over my body. I even started to lose my eyesight at one point. I did lots and lots of research on the web until I finally figured out, through a painstaking process of elimination, that I did, indeed have lymes (this was years before my diagnosis) and that I had contracted something called Morgellon's disease, which accounted for the skin ulcers and visual problems and which had no cure. However, on further research, I determined that Morgellons and River Blindness have the same symptoms that I have and that River Blindness, otherwise known as Onchocerciasis, can be treated by tetracycline, which also kills lymes.

This is good, you think. This can be cured, right? Uh, no, sorry. As I said before, the lymes is deeply entrenched and, while a short course of tetracycline did save my eyesight, I couldn't find a doctor to prescribe it for me long-term and in high enough dose to make a real difference. After all, new lymes patients are treated by intravenous tetracycline, something that wasn't done for me. After much research and experimentation, and some advice from knowledgeable friends and relatives, I started basically throwing the kitchen sink of alternative medicine at these conditions. So far, they seem to be helping in the long run, except that they cause the die-off reaction that I mentioned earlier and the change is slooooow. So, to make a long story short (yeah, I know, too late), I'm herxing (as we call it) and tired and grouchy, etc, etc, etc.

Anyhow (one of my favorite words, since I tend to change topics often), here I am back at the keyboard, watching TV and hoping that my new dvd recorder will play my BBC dvd titles. The old one didn't but it was over 6 years old and I was told that some of the formats had changes a bit. I especially want to be able to watch "Sherlock" and "Mrs Bradley Mysteries" w/ Dame Diana Rigg of "The Avengers" fame (no, the old one, not the superhero one).

Actually, speaking of which, I just ordered the dvd of "The Avengers", which I haven't seen but I've heard great things about. I've already seen "Thor" and will buy it just so I can rewind Thor without a shirt and just about any scene with Loki in it. >drool< Hey, I may be middle-aged, but I know eye candy when I see it. I wonder where I can find a nice middle-aged viking...

Need some  rest right now, will be back. This beats just sitting in a lounger feeling rotten.


  1. Your funny as usual. Now I understand what is happening with you healthwise. I 'm sorry I didn't know the whole story. My fault for not keeping in better touch with you. So I'm going to guess that my suggestion about making and selling jewelry & bouquets on esty was not very helpful. Sorry. I'm praying for you to get better and get a job. May the goid karma be with you.

  2. I know why you like Loki. He is very similar to Mark Lindsay Chapman who played Dr. Anton Arcane in Swamp Thing.